Board of Directors

VHL Alliance

Posted: 5/9/2019

Position Type: Board (Unpaid)

Function: Other

Primary domain: Healthcare

City: Nationwide

Postal code: 02132

State: Flexible

Country: United States

Organization Information:


$0 - $1M


Mission statement:

VHLA is dedicated to research, education, and support to improve awareness, diagnosis, treatment, and quality of life for those affected by VHL.

Vision: Curing Cancer Through VHL

Position Details:

Job Description:

Founded in 1993, the VHL Alliance (VHLA) is the world’s leading organization in supporting von Hippel-Lindau Syndrome (VHL). We are dedicated to improving the lives and optimizing the treatment of those affected by VHL while aggressively pursuing a cure. 

The VHL gene is in all of us, helping to suppress the growth of tumors. Those with a flaw in the gene are prone to develop tumors throughout their bodies and throughout their lifetime. Researchers are racing to identify and control the pathways that allow tumor growth in VHL and other cancers. Their progress provides hope for all of us by Curing Cancer Through VHL.

The purpose of being a Member of the Board of Directors is to support the process for identifying and stewarding the organization’s mission and purpose.  In addition, this position aids with the selection and support of the Executive Director, facilitates the availability of adequate resources, shares fiduciary responsibility for the organization, and ensures legal and ethical accountability.

  • Be informed about and promote the organization's mission, services, and programs
  • Prepare for meetings by reviewing materials in advance
  • Fully participate in all board and committee meetings and functions including the annual meeting and fundraiser
  • Fully participate on committees or task forces and deliver on strategic plan assignments
  • Hold self and others accountable for delivering on commitments
  • Serve as a mentor for new board members
  • Make a personal financial contribution to the organization that is personally significant and support generating contributions from other sources
  • Be familiar with and follow all policies including conflict of interest and confidentiality
  • Identify potential board members and actively support the recruitment process
  • Direct all inquiries and requests to the Executive Director, not staff
  • Proactively assist the board in carrying out its fiduciary responsibilities by reviewing the organization's monthly and annual financial statements and sharing any concerns or suggestions regarding the financial health of the organization
  • Respond and take action on board decisions and activities in a timely manner (i.e., approval of minutes and/or other decisions, responding to communications, etc.)


Desired Skills and Experience

  • Believes in the primary mission and purpose of the organization
  • Creative problem-solver who listens and is receptive to new and different ideas
  • Ability to create and work in a collaborative problem-solving environment by working positively to promote organizational success
  • Able to commit time and resources to support the organization
  • Willing to participate in cultivating and soliciting funds for the organization
  • Demonstrates honesty and integrity in carrying out duties as a board member
  • Consistently delivers on commitments made to the organization
  • Possesses and willing to share specific skills and abilities needed to support the organization


  • Fulfill required time commitment
  • Honesty, integrity and respect for others
  • Leadership skills
  • Self-confident and outgoing personality


  • Experience with non-profit organization management preferred
  • Demonstrated interest is the non-profit/social responsibility sector
  • Be an expert on the organization in general, including strategic direction, and an expert about board matters in particular, such as major issues, policies and procedures, and board priorities
  • Demonstrated effectiveness in meetings and task forces; seen as a leader
  • Solid professional reputation


  • Deep satisfaction knowing you are improving the lives of others while making strides in Curing Cancer
  • Working with a dynamic, interesting, enthusiastic, enjoyable likeminded people from all walks of life


Unpaid Board Position

Posting Expiration Date:


How to Apply:

If interested in joining the VHL Alliance’s Board of Directors in their effort to help others and Cure Cancer through VHL, please submit your resume via email to [email protected].


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